Colin Hambrook continues to be mad... / 10 May 2010
Living with disability can get extreme sometimes. For me, living in the wake of so-called 'schizophrenia' has meant a lifetime of juggling the darkest emotions like tennis balls. My relationship with the illness has been a lifelong struggle... one of those things you are not meant to own up to.
It's a guaranteed conversation-stopper. Even within the disability community you are not guaranteed an empowering response. Reference to the illness can be a great way of losing acquaintances you are not particularly keen on in the first place.
The best you can expect is a conversation about how much better the medication is these days... as if the pharmaceutical companies were engaged in quality control of the neurological issues, heart problems and effects on the central nervous system which are endemic to all the anti-psychotics.
In an interview about definition and language on BBC Radio 4s Word of Mouth, Francesca Martinez asked "why not redefine people with schizophrenia as 'overly imaginative.'" In context she meant it as an understatement challenging the media's tendency to capitalise on the instant shock value to be gained from adding the 'schizo' word to a headline.
I saw a great ad at a multi-screen cinema recently... 30 seconds of blurry camera and dramatic sound introduce the oft-used cipher 'schizo' - leading you into thinking you're about to see a trailer for a violent horror movie. And then the image is cut with an ordinary family situation. A middle-aged man addresses the camera, telling the audience how he has lived with 'schizoprenia' for 12 years and has been able to live a full life with support from his family.
There needs to be more responsible open discussion of so-called 'schizophrenia'. As an illness it is all about irrational fear - as effect and as a cipher. Living with overly developed fear responses, is incredibly debilitating and hard work for those around you.
Societies mindless, sensation-grabbing responses don't help. Alison Wilde sent me an interesting analaysis of the nature of fear's companion, evil - in an article on a book titled On Evil by Terry Eagleton in The Independent.
It seems that we've never quite recovered from the boring name goodness and virtue made for themselves during the Victorian period. Despite the banality that accompanies evil; we have become obsessed by painting evil as romantic and glamorous.
During the Thatcher years we saw a reinvention of selfishness as 'altruism', in the desperate game of justifying greed. It set us up for a lot of fighting... and of course, we were the evil ones in demanding that support of our communities was a necessary part of finding strength to lead fulfilling lives.
But our community does continue to thrive... and will continue to thrive as the going gets tough...
Keywords: disability art,disabled people's movement,mental health,psychosis,